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What I Keep in my Spoonie Bag.

Writer's picture: Kayla A. Kayla A.

Going back to school is a daunting task for many spoonies, wether it be middle school or college. Knowing what to keep on you can be cause for a lot of stress. I personally (and I'm sure many of you could agree with me) like to be overly prepared. What if I have a flare-up? What if I suddenly have a new symptom? What if I'm out longer than planned? What if I have to go to the hospital? - These are just a few question I have asked myself before going out even for just an hour or so. From this I have create my "Spoonie Bag" that carries anything I could need right from one bag.





The Bag

I use this Micheal Kors bag (obviously you can use any large tote type bag) inside I am able to keep medicine, supplies, and stuff for school. I could do this and backpack, but I prefer to keep everything in one bag as it is just easier for me, personally.






My "Spoonie Bag" without the medicine bag.

Hand Sanitizer- The cute dino holder is from bath and body works

Sick Bags- I keep mine tucked in the cute Toms bag so no one knows what it is.

Wallet- For the obvious stuff, but I also make sure to always have ID and my Insurance card.

Cute folder from Ban . Dō - I keep my two most recent medical records in here. If my school needs info for disabilities or if the hospital wants to see records, I always have something I can pull out quickly.

Water - Stay hydrated, kids

Sunscreen- Usually I take this out when it gets colder, but I am very pale and need it constantly in the summer.

Note Book and Pens- I keep a medical journal in here (Which I will go into detail in, in another post) Also handy for class!

Computer- I use this for almost all of my class notes, and I typically have E-TextBooks on here as well, just to save on space!

Charger- For my phone. In case I'm out long, but especially in case I have to go to the ER because we all know how long you ca be stuck there.

Rescue Inhaler- I keep my rescue inhaler in a front pocket so its easy access and I know if I need it I wont have to fumble around for it.




For my medicine/aid bag I use a LLBean shower tote, and honestly it holds so much and is a lifesaver for my medicine.
  • Medicine- Back-ups of scripts and OTC meds. Pain killers, cold and flu tablets. Extra Ned treatments

  • First Aid- IcyHot, med tape, wrap, Band-Aids.

  • "Tools"- Peak flow, extra oxygen tubes, portable air concentrator, inhaler chamber, pulse oximeter.

  • Other- Tide-to-go, tampons.





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5 Comments


kanishamays12
Nov 24, 2023

I struggling with asthma what should I put in my work bag

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Joni Canida
Joni Canida
Jun 27, 2024
Replying to

For my asthma I have a bag with my small portable nebulizer, inhailer, meds for the nebulizer, spacer for the inhailer, charge cable for the nebulizer plus a plug in adapter. A card with my prescription and my doctors info.

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aktc2012
Nov 14, 2023

Thanks for sharing. Meds list and how many repeats I have left is on my phone. As is medical history with dates of diagnosis. Just easier when chatting about so many things at monthly GP or specialist appointments. Scripts in a small black zippered bag that lives in the car. Remembering to go to Chemist is all this fugue can handle. EDS diagnosis for my daughter and Granddaughter done. Me next. Not sure when Rheumatologist is coming to the outback town next.🤞soonish.

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kanishamays12
Nov 24, 2023
Replying to

What should I put in my work bag if I have chronic pain and asthma

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Danielle Vickers
Danielle Vickers
Sep 15, 2023

Great idea! I also keep a list of all my medications in my wallet. I use an index card, folded in half and trimmed to fit a card slot in my wallet. When I go to a new doctor and they ask for current meds on the new patient forms, I just hand them this list and ask them to make a copy for my file.


Danielle

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